Autoimmune Disease-Result of Neglecting Feminine Consciousness?

These thoughts I’m writing in this post have been in me for awhile; I just didn’t have the words.  I needed to wander around for awhile before things started to make sense.

I was diagnosed with Hashimoto’s 2 1/2 years ago.  I dove into my healing with tenacity-my anger had a healthy place to be channeled.  The first many months revolved around lifestyle changes, doctor appointments, food prep and food reintroductions, and finding a supportive health community.  The first 6 months after my diagnosis I took care of myself full time.  I had no idea yet of how these practices were forming me.

After the physical changes seemed manageable, I dove into emotional healing–through spiritual direction, writing, therapy, yoga and meditation.  Finding friends who could compassionately listen to the fact that chronic illness takes a heavy toll on my body.  And being sick in a world created for healthy people is a daily challenge even on a good day.

What has taken the longest to articulate are the drastic spiritual shifts that have occurred.  No doubt that all these aspects are interconnected.  The combination of going back to therapy, starting a meditation practice, re-entering the world of bodywork as a patient, and writing publicly about my assault have launched me into the question, “Where is my intuition and vulnerability leading me?”  I don’t really know the answer to this question, but at least for now, I’m writing this post.  And this post speaks of the beginning of my journey into the Sacred Feminine.

_____________________________________________________________________

75% of those affected by autoimmune disease are women.  Researchers now know that in order to get an autoimmune disease, a “perfect storm” must present itself.  25% can be “blamed” on genes, yet 75% comes from a variety of environmental triggers-be it diet, leaky gut, a parasite or gut infection, stress, environmental toxins or mold.  Someone could have the genes for an autoimmune disorder, but not have the disease “turned on” because the gut micro-biome is in good shape.  (That is, my belief is that all autoimmune disease starts in the gut.)

The next question that surfaces is: “Could our lifestyle help these genes to not be “turned on” and have a full-blown autoimmune disease surface?

Well, if this is true, we have a lot of culturally pressures, that we must learn to resist, even if it feels almost impossible.  But generally what do we as Americans give into?

Our over-structured, over-scheduled pace of life.  Productivity.  Efficiency.

Stress.  Fear of Missing Out.  Accumulating Stuff.  Hiding Our Emotions.

Our body wasn’t meant to be this busy.  And people intuitively know this if they would be honest with themselves.  And this isn’t just about sick people.

We don’t know how to rest anymore.  And most of us, feeling hopeless, just assume we have to succumb to the busyness and connectedness of the world that isn’t going to change.

But I want to step back and say that the subconscious of our nation is toxic.  We have valued to the extreme, masculine ideals and neglected the feminine to our demise.  Pushing harder and doing more and making money isn’t ultimately fulfilling.  And my generation knows this.  We long for authenticity, for stories, for ritual, for meaning.


What aspects of the feminine consciousness have we neglected?

(And when I say feminine consciousness, this exists in everyone!)

We have neglected the earth, our bodies, rest, emotions, intuition, and friendship.

When we neglect the earth, when we decimate forests, when we throw chemicals on crops, when we mistreat animals, we endanger ecosystems, create contaminated soil (rotating crops and not just making corn for high fructose corn syrup would be a good idea!) and contaminated food.

When we neglect the body, we live in a dull, numb, and painful state.  We push too hard to be productive, to “make it” in today’s world, but we become deaf to our bodies’ cries.

When we neglect rest, we can no longer live in the moment.  We lose the ability to cultivate gratitude and to unplug from external and internal demands the mind is constantly making.

When we neglect our emotions, we hold in or lash out in anger, bitterness, and resentment. Forgiveness of ourselves becomes impossible.  Forgiveness of our enemy unthinkable.

When we neglect our collective intuition, we graduate smart people who have no empathy.  We have doctors who believe that many women in this nation are hypochondriacs.  We create a nation where many people suffer alone, because we don’t have guides of people following their intuition, or we don’t know how to find those people.

When we neglect friendship, work or family takes over.  Neither work or family are bad–yet we have more needs and desires than these.  We need different experiences.  We need to laugh.  We need people to keep showing up because they want to.


How do we wake up?

I feel like that question can only be answered in honest community, not just by reading this post and giving it a minute’s thought.  I’m confident though that in honest community, through stories and fights and listening, through prioritizing women’s voices-you might just find your way to an answer.  Investment will be involved though.

On a personal level though, I will speak of the practices that have been part of my “awakening.”

  • A mindfulness practice.  There’s plenty to pick from.  Choose one.  Stick to it.  Pay attention to the subtle changes.  Warning: no instant gratification here.
  • Yoga, or another form of mindful exercise that brings you into your body and out of your head.
  • Friendships with people who are open to growth and change.
  • Deep soul searching of ways we are harming the earth.
  • Listening to the answers to these questions:
    • What do I want?
    • Where do I hurt?

Having Hashimoto’s has shifted my spirituality in that I no longer have a choice whether or not I want to neglect my body or not.  So I’m letting my body speak, and I’m listening.  I’m integrating the feminine into my culturally-conditioned, unbalanced masculine soul.  I’m more willing to let my personal journey lead me into the unknown.

75% of people with autoimmune conditions are women.  That’s  a hard fact to come back to.  For in fact, the unbalanced masculine,  wanting to dominate nature has in fact harmed women most.  For women intuitively know that the health of the earth and our bodies are interconnected.

Yet if our collective longing is healing and wholeness, maybe then we will have enough courage to say, “We are all sick.”  Not broken, but in need of healing.  Maybe then we would lean on each other in friendship and tell our stories.  Speak of the evil in our own hearts and how we want to dominate the “other.”  Maybe then our relationships would be mutual, separated from roles of “giver” and “receiver.” Maybe we could learn to be quiet in community again, not needing to fix, but simply being present.  Maybe we could risk being awkward and breaking social norms.

Maybe, just maybe the swarms of chronically ill women in this country, as they commit themselves to healing–will be the wise healers, one of the most sought after female archetypes.

Advertisements

Vignette #4

This is my fourth post about my sexual assault by a doctor.  The posts do not necessarily go in chronological order, but it’s helpful if you first read my post on healing ,  Vignette #1 , Vignette #2, and Vignette #3.

I went to talk with a female lawyer, based upon a referral.  I sat in a big conference room in her office building in downtown Indianapolis, and waited for her to enter.  With warmth and ease, she greeted me, and told me that I could take my time and she would be taking notes.

She noted every comment of sexual harassment, the assault itself, and any detail about the setting and the doctor’s demeanor that I could remember.  Then came the dreaded question, that I knew was going to be asked, although she pulled it off well.

“Did you tell her to stop?”

“No, I didn’t.  I told her I was in pain, but I didn’t tell her explicitly ‘No’ or ‘Stop.'”

“Why?”

“I knew that she wouldn’t.  Two sessions before, I told her that she was using too much pressure when she massaged my leg, but she ignored my comment and kept using the same amount of pressure. She didn’t seem to have too much consideration for the amount of pain I happened to be in.”

Before I was left, I was told that they would contact the clinic for my medical records, especially from that session, and that I would be getting a letter stating whether or not they would take my case.

I waited several weeks.  No letter.  I knew that the lawyer’s assistant, who was a nurse, had research to do about whether or not what was done to me was a “legitimate” medical procedure.  So I waited some more.

Finally, it came.  About a month later.  She would not take my case.

I remember just staring at the letter for about 5 minutes wondering,

What do I have to do to be believed?

How do you live and heal with a lack of justice?

I felt in my body extreme tension, especially in my jaw and shoulders.

The weight of being a victim.

The weight of feeling powerless.

The weight of knowing that choosing to tell my truth would be an uphill battle.

Vignette #2

This is my second post about my sexual assault by a doctor.  The posts do not necessarily go in chronological order, but it’s helpful if you first read my post on healing and then Vignette #1.  

The hard part about being a new patient at a chronic illness clinic is that many treatments are not well known. There is a steep learning curve to understand the treatment themselves and how they are meant to help you.

There’s also a lot of lifestyle changes involved as well. So I was changing my diet, I was making sure my deodorant, shampoo and other personal care items didn’t have any gluten or chemicals.

I made the drive up to the suburbs for an amino acid injection every 3 weeks, even though I couldn’t tell what difference it was making. I was just told it would take time and that this was stopping my autoimmune attack on my body. I had to believe them. I didn’t know where else to go for help. I mean this doctor had finally diagnosed me after 11 years of health struggles. What else was I supposed to do except “trust the process?”

You the reader can see where the vulnerability sets in. Here I am, a patient just diagnosed with Hashimoto’s. My health was so bad I had to quit my job. I was sleeping 2-3 hours per night. I felt like a shell of my former self. I was gaining weight, my hair was falling out, and my skin felt scaly. I was desperate. I would do anything to get better. I wanted my life back.

What a perfect place to work if you wanted to abuse patients?

They are chronically ill. Conventional medicine has failed them. Many times these patients have searched for years for a doctor who understood what was going on. They are dependent on your expertise.

These patients often come into the clinic very fatigued and with a low sense of self, a natural outflow of being sick for years. They are vulnerable and must trust the doctor for their wellbeing.

Culturally, doctors are held in high esteem and hold tremendous amounts of power. They are virtually unquestioned.

The head doctor of the clinic believes you are one of the best physical therapists in the state.

Your referrals are all “in house” and you have the backing of the medical board and the head doctor.

And when you work, you get to close the door.

Vignette #1

This is the first of several posts describing the events surrounding my sexual assault by a female doctor. I feel at this time writing serves as my outlet to utilize my voice, not for the sake of pity, but because living as a survivor who has been institutionally silenced becomes suffocating.

There are many ways I have healed in these past two years.  If you want a glimpse into this, read my previous post here.  

I feel privileged that you would read this.  May you be able to hold all the love and evil in the universe together, without forcing yourself to make sense of it, and then let it go.  If my post stirs something up for you personally, I hope that you are able to feel what you need to feel, sitting with these emotions, yet with extreme compassion and love towards yourself.  I stand in solidarity with you.

I remember walking out of the room, down the hallway, and to the check-out lady to pay for my appointment. I was in a daze and just wanted to get out of the office.

As I walked down the hall I distinctly remember thinking 3 things:

  • “This is not the first time she’s done that before.”
  • “Was I supposed to know that was going to happen before I walked in there today?”
  • “Why do I have to pay for this appointment?”

I paid anyway, and I got in my car and sat for 2 minutes, catching my breath. I still needed to walk into the pharmacy attached to the doctor’s office to pick up my supplements. But it was hard to make myself go in. As far as I was concerned, I didn’t want to walk into that building ever again.

I drove home in a daze, but stopping at Aldi to get groceries first. Before I got out of the car, I slammed my fists onto the steering wheel three times and just burst into tears.

Somehow I went about my day. I talked to my counselor on the phone, and I couldn’t really get the words out. I was still trying to figure out what had happened to me.

I stopped eating and I wasn’t sleeping. I called a few trusted friends and told them what happened.

I told the wife of the family I was living with at the time, in case I seemed more withdrawn, sad, or overwhelmed.

Per my counselor’s suggestion, the next morning I drafted a letter to my clinic; the head doctor and the human resources personnel. It is understated to say that it’s difficult to draft an objective letter when your brain still feels hijacked, yet you know that your potential in being believed is all wrapped up in this letter.

As I wrote the letter the questions that plagued me, and I imagine so many other women across the country, were:

“Why try so hard, when the likelihood of being believed is so slim anyway?”

“Doesn’t the medical establishment just protect their own?”

Choosing Small Wins

I’ve started this practice this summer to write down 10 small wins from the previous day when I wake up in the morning.

An author who writes about healing Hashimoto’s encourages this practice in his book.  I’ve found this habit to be met with much resistance, simply because it’s hard.

Summer is the hardest season on my body and mind–so many days I wake up with big losses on my mind, rather than small wins.

However, on the days, I practice this, I do notice a shift in my perception.  Sometimes doing this exercise brings tears to my eyes, which is probably why I try to avoid it.  Sometimes I write phrases like, “I got out of bed today” or “I didn’t get tired driving to work” or “I listened to my body and cancelled hanging out with a friend.”

Sometimes the exercise feels too painful and I skip it altogether.  You see, it’s hard to admit, but sometimes gratefulness brings up this ache that I am indeed sick, and although I can heal, chronic illness is something I manage every day. When I write things like, “I didn’t have a reaction when I stepped into an old building today” I know that my healing is far off-far off from what I want it to be.

The liberating piece, though, is that I claim reality for what it is.  In doing so, I open the door to be compassionate to myself, and in writing my truth, I can be compassionate to others.

The more I am in touch with my body in my illness and in touch with contemplative practice, I live into the obvious-that I am dying.  In Western culture, this seems morbid, something we don’t talk about and avoid.  And yet, I feel this strongly living with Hashimoto’s.  This spring I realized that I desperately needed a spiritual practice that could affirm suffering and also help me detach myself from it, so that my suffering could be the very place where transformation occurs.  Enter centering prayer.

So my mornings look like writing down things I’m grateful for, recording 10 small wins, and sitting for 20 minutes in silence, practicing the art of letting go.  This practice is shaping me.  Although it’s human and messy and ungraceful, it’s a rhythm I’m trying to cultivate.  I’m engaging in the practice and art of learning how to die before I can die.  For in dying to myself, I will learn how to truly live. I will see myself for who I truly am, see the Divine for who he/she truly is. I will see people as human with similar needs, wants and desires as mine, longing for connection and intimacy.

Last week a small win included quitting my job at Fortune Academy, a job I really did like.  A place I hoped that I could step back into the classroom. But I needed to let it go, along with the dreams and hopes I attached on to working there.

The thing about letting go is that is always leads somewhere else–it doesn’t lead to nowhere.

So I’m practicing small wins, sitting in silence, going to yoga, finishing well with my tutoring students this summer, and letting go of dreams, big and small. I am more than my pressing thoughts, emotions, jobs, failures, victories, and the extent of my healing.

I am connected to this expansive, good, and abundant universe and to people who just want to see me thrive. Seeing small wins and learning to let go are daily invitations to a larger and more vibrant perception of myself and the world.  I want to live there.

Eavesdropping

Last week, I was eavesdropping on a conversation in a public library while I was waiting for my tutoring student.

I knew quickly that the woman answering the questions lived with a chronic illness.  She was describing in vague tones, how her poor health was affecting her entire life.  She spoke of the struggle to still see what she had, not only what she had lost.  She still had her husband and her part-time job.

The conversation shifted slightly when the older woman asked how she experienced God right now.

Her response was simple, but telling.

“I want to know that He’s looking out for me.” 

There was a raw honesty in her pain and desperation.  For this is what we all want.  This is what we all forget.

Is he really a friend?  Does he care? Will he show me that there really is light in this world, not just darkness?

The woman  in chronic pain held back tears as she said, “it’s so hard to find daily support right now.”

 

 

As I listened, I got teary-eyed.  I’ve had that exact conversation so many times.  And yet this time being an observer, I experienced such appreciation and love towards both women.

The gift the woman with chronic illness gave was honesty and desperation.  The gift the older woman gave was a calm, empathetic presence and knack for listening and asking timely questions.  She gave the space for silent hope to be born. She is hopeful for the younger woman who can’t be hopeful for herself right now.

What I experienced in that ordinary moment of waiting was Christ on earth. Nothing less.

Two women both giving and receiving.  Both women willing to sit in sadness, to accept reality. Yet in their talking, hope, this invisible force was growing.  This space the women created was beautiful.  A space that Christ can be seen for who He actually is. One woman at the end of herself, another willing to affirm silently to herself that this is really where life begins.

I was assured as these women left, that this space they created together, was actually the incubator for joy. Not culturally-defined joy with bubbly, extroverted personalities, and an overabundance of laughter (although none of these attributes are wrong!) But a deep-seated joy, that can only begin as one lets go.  As chronic illness tends to strip away the people and work and facades we cling to, there is always the opportunity to begin again. To let go, to accept, and to begin again.

I am thankful for this moment of eavesdropping.  To see how close the Divine was to these women, even though I’m certain that he felt so far away.  I can only hope that some people experienced the closeness of God, as they witnessed me over the years angry and crying in many coffee shops across the city.

–For all those who have listened to me in my hopelessness, who hoped for themselves and for me.

Breaking the Silence

 

I wondered about the day I would write this. Or if I ever would. Neither option is better or worse, but instead it’s about listening to the tones of one’s own healing story, and lean deeply into one’s intuition.

And my intuition is telling me to speak.

I was sexually assaulted by a female physical therapist two years ago today under the guise of medical treatment. I had just been diagnosed with Hashimoto’s 3 months before, and the doctor who diagnosed me referred me to this woman who worked in his building.

Last fall, I started following the Larry Nassar case and the US Gymnastics cover up of the rampant sexual assault in this sport. I felt several emotions: both a sense of validation and sadness. What happened to me has happened to hundreds, if not thousands of girls or young women. I am not alone, and yet part of healing is delving deep into the systemic injustice of assault and the silence that is interwoven into the story.

Sexual assault is bad enough. And then to worsen the injury, I, along with many women who have already testified in the Nassar case, have sought out the help of authorities, only to be silenced or shamed or told that “this is a reputable medical procedure.”

I won’t ever forget the day I got a letter in the mail from the female lawyer in Indianapolis, that I reported my assault to. A simple template letter just stating that she would not take my case. What happened to me apparently was not assault, but a documented medical procedure.

A response like that really messed with my head. Intuitively I knew this wasn’t true, yet I still was left to feel stupid. I was left to feel like I didn’t know the difference between medical procedure and assault. That somehow I was supposed to come to a place of acceptance that vaginal penetration without gloves or lubricant was supposed to heal my severe menstrual pain, what I was being treated for. The medical and legal system had let me down.

That acceptance never came. And since I’ve spent considerable time healing the past two years, I’m in a place where I can speak. This Nassar case feels personal for several reasons other than the fact that I find myself within the stories these brave, strong women are telling. I grew up 90 minutes from MSU, and personally knew several female athletes who attended Michigan State and had injuries sometime during college. I seriously hope none of them saw Nassar. I also currently live in Indianapolis, headquarters of U.S. Gymnastics, now the hub of an enormous cover-up.   U.S. Gymnastics stayed silent for way too long, and spoke too late.

I’ve spent many months thinking “What would be helpful about me speaking up?”

First, the answer must be that it’s healing for me and I must be strong enough to enter into the hard conversations that come afterwards. Because I know that many people will not get it or know what to say. Some may treat me differently afterwards or avoid me because my speaking out made them uncomfortable. Many don’t understand why a survivor of sexual assault needs to speak out for his/her own healing. But ultimately I am not speaking to the ignorant or the uncomfortable. I’m speaking to the people who know exactly what I’m talking about.

I’m speaking to say, “I felt alone too, but now I don’t. And I don’t want you to feel alone either. The silence has harmed us both long enough.”

I’ve also learned that in taking the risk of telling a few people privately, the response has been loving and kind.

For those who are reading this, and want to be compassionate through words, but feel fearful about saying the wrong thing, here are a few pointers of what to say and what to avoid, at least in addressing me at this time. Every survivor may have their own different set of preferences.

-Please don’t ask questions. I’ve given all the information I want to give in this post.

-Please do not spiritualize assault. It is wrong. Period. Mentioning God’s redemption adds insult to injury.

-Please do not speak if you are shocked or overwhelmed. Projecting your own charged feelings about assault onto a survivor is very harmful.

-Please do not offer up a general, “If there’s anything I can do, let me know.” I know that this statement is said with the best motives. However usually, someone who hears about an assault wants to feel useful, in order to remove the uncomfortability that naturally surfaces. I am not asking anyone to do anything in particular, just be a person who can receive my story as truth.

-Please do not make referrals. I have a strong support system. I am in therapy and yoga. I am making healthy choices for myself.

-Please be yourself in your response, giving dignity and not pity.

-Please, if you see me in person, feel free to say, “I read your post, and ….” I will feel honored, not embarrassed.

-Please, even though this list is long, do not be overly worried about saying the “wrong” thing. Maybe consider, “if I was in Alyssa’s place, what would be the most loving thing I could hear?” Please, speak love.

 

 

Simple Questions

Last week I listened to a podcast, where the person being interviewed expressed that the words of her yoga teacher were still rattling around in her mind:

“How tender do you want to get? How soft do you want to become?”

Those words made me stop.

I want to be a person who can receive. Someone who can be present, accepting the simple moments as they come and go. I want to be able to be still myself, so I realize what I need and want, and not be so terrified of my fatigue.

I want others to know that they are so important, that I’m willing to get close enough so that they change me.

And yet I’ve lived enough to know that this vulnerability is costly.  My generation values authenticity and vulnerability and yet it’s hard to be the first person to speak, the person to say, “I’m not okay.”

These months have been ones of seeing myself more honestly, seeing my protective walls, and knowing that they don’t just come crashing down in a moment.  It’s more like a slow melting away.

Receptiveness doesn’t mean being a push-over, just as sacrifice means that one must first recognize that there is a self to sacrifice. Without a discerning eye, receptiveness could look like people pleasing and helping could be avoidance.

So I keep returning to stillness, to myself and the Divine, to see how much my ego actually is at work and to see my own goodness and worth more clearly.

Sometimes receptiveness looks like receiving love, being affirmed, being reminded of how valuable I am just for being me. It could mean a hug, a compliment, being still enough to receive this moment, and the unknown that comes with it.

In order to be soft, I want to live into my body, knowing its joys and its pains.  I want to feel what I’m actually feeling, when my jaw tenses up, when my shoulders scrunch to my ears, or when I can actually touch my toes! I want to know when my breath is shallow and when its full. I want to listen to the emotions that rise up in me.

As I daily pay attention to myself, I will be more attune to others, having extra capacity for laughter and tears.

For in times of vulnerability, there is a shared tenderness, and we both could become softer as a result.  Of course, the choice is ours.  We have to be willing to sit “on the mourner’s bench” as Nicholas Wolterstorff likes to say.

The one who is tender speaks bravely, inviting everyone else in the room into a softer, gentler place.

Into a more expansive view of the world.  Into a new emotion, understanding, or empathy.

But there is no force. She could be met with unhelpful silence, misunderstanding, pet answers.

But she also could be met with love and acceptance.  There is great risk in seeking to be tender.

Yet there’s also an invitation to everyone else in the room.

Do you want to be tender and soft too? Will you join me on this journey of honesty, risk, and feeling deeply?

 

 

The Art of Receiving

As I wrote about on Monday, today is my Diagnosis Day.  I’m not really sentimental about this actual day, and yet this year, I wanted to set it aside, and celebrate.  This year, today deserves some attention.

Two years ago, I was so desperate to know what was wrong, and how I could help myself.  These longings were the beginning of self-compassion.  I knew that I would need to receive my illness, to work with my body, and learn how to live well, while being sick.

I knew my lifestyle was about to change, although I didn’t exactly know how.  It meant continuing to slow down, to see the miracle of my body’s healing capacity–when I had lost faith in my body altogether.  It seemed like my enemy and daily it worked against my wellbeing.  Little did I know, the pain, the fatigue, the inflammation, the brain fog, were all warning signs that my body was out of balance.  My body was fighting so hard to keep me alive.

And in this fight to stay alive, I’m learning to receive, rather than strive.  To give out of abundance, rather than emptiness.  To embrace my limitations, rather than run from them.  To be hopeful, that even greater things are down the road.

And so I pass along these lessons.  May you receive them, as I have learned to receive them, even if its with reluctance and cynicism (which was often the case with me!)

3215773584_b6703231f5

I’ve learned to receive the nutrients my body needs.  I spend much more time cooking and savoring good food.

I’ve learned to receive the invitation to rest.  I don’t nap much anymore (I don’t need to!), but I do structure my time in a way that allows for self-care, whether in reading, watching a movie, talking a walk, going to yoga, spending time with a friend, playing with the dog.  I’m learning that rushing through life does violence to myself and others.

I’ve learned that my mind only registers thoughts from my heart and my body.  I’ve learned to receive the messages my body sends me, and place those messages as a higher priority than my thoughts.  I’m learning to strengthen the mind-body connection through centering prayer, meditation, and yoga.

I’ve learned that I don’t really miss out on much if I go to bed early.  While this lesson continues to be a difficult one, adequate sleep continues to be a key element in my healing process.  While I live counter-culturally in many ways, I’m learning that when I can be present in a social setting, I have much more to give in attention and presence, if I first take care of myself.

I’ve learned to receive the art of balance, both at work and home.  I know that working 40 hours per week will be too much for me.  And so I work 26-28 hours per week, in a job that I continue to grow to love.  I teach students how to thrive despite their own limitations.  On weekends, I need plenty of downtime to rest, enjoy time to be creative, and prepare for the week ahead.

I’ve learned to receive help and kindness.  It’s difficult to believe in abundance, in the worst seasons of an isolating chronic illness.  And yet, there were people right around me who helped with meals, moves, cleaning, doctor appointments, living situations.  Some people just listened.  Some have taken the risk of learning from me, especially at my worst moments, which gave me a sense of dignity, enough to keep fighting to heal.  Some have offered hospitality, and just said, “I’m here” and let me take them up on their offer when I was ready.

I’ve learned to receive my intuition and listen to it carefully.  I’m grateful for the healthcare team I have in place, and yet I typically know what’s best.  I’m learning not to doubt myself.

I’ve learned to receive my own strength.  My drive to live, to heal, and to thrive continues to grow. It’s one of my more beautiful traits.  And on those hard days, it’s perfectly okay for my mantra to be, “You’re a bad ass!”

I’ve learned to receive my illness as a gift.  I don’t say this lightly because I think suffering is horrific, both my own and others.  Yet, through illness my life has been completely deconstructed.  This has been a scary and unnerving experience, and yet I have gotten to start over.  I get the chance to receive who I truly am, rather what I was trying to make myself into.  Striving led to complete exhaustion, while rest and centeredness leads to contentment and peace.  I’m on a much better trajectory.

 

May you and I receive the love hidden in our own stories and right before our eyes.

 

“You Have Hashimoto’s”

On Friday of this week, is my Diagnosis Day.  Two years ago, I was told, “You have Hashimoto’s Thyroiditis.”

I was both relieved, and at the same time intuitively knew, this was only the beginning.  I had a long journey ahead of me.  And yet the diagnosis was step 1.  And after 10 years of searching, I finally knew what was wrong.  There was nothing particularly special about that day.  After a 2 hour diagnosis appointment, I went home and laid in bed the rest of the day.  I’m sure it was a combination of research, of Netflix, of napping.

It was both an ordinary day, and in a very real way, my life had changed.  I knew how to help myself.  In the middle of winter, I received amazing clarity.  I wasn’t lying for 10 years; I was right.  I was in pain, I was fatigued, and I was unfortunately moved around the healthcare system, without answers.  But the clarity that came to me that day was a glimmer of hope that I could trust my intuition, and that a few people must know how to listen.

At first this listening came in the form of doctors, and yet as I learned how to talk about my condition, compassion from others followed.  And then there’s “knowing” from an author I will never meet.  This blessing, written by John O’Donohue, felt like it was written for me.  I came across this last summer, and the thought of “harvesting this slow light” put words to the journey I wanted to embark on.  And now, I’m trying to listen to the wisdom in these simple, yet powerful words.

 

img_0541

For a Friend on the Arrival of Illness

Now is the time of dark invitation

Beyond a frontier you did not expect;

Abruptly, your old life seems distant.

 

You barely noticed how each day opened

A path through fields never questioned,

Yet expected, deep down, to hold treasure.

Now your time on earth becomes full of threat;

Before your eyes your future shrinks.

 

You lived absorbed in the day-to-day,

So continuous with everything around you,

That you could forget you were separate;

 

Now this dark companion has come between you.

Distances have opened in your eyes.

You feel that against your will

A stranger has married your heart.

 

Nothing before has made you

Feel so isolated and lost.

 

When the reverberations of shock subside in you,

May grace come to restore you to balance.

May it shape a new space in your heart

To embrace this illness as a teacher

Who has come to open your life to new worlds.

 

May you find in yourself

A courageous hospitality

Toward what is difficult,

Painful, and unknown.

 

May you learn to use this illness

As a lantern to illuminate

The new qualities that will emerge in you.

 

May the fragile harvesting of this slow light

Help to release whatever has become false in you.

May you trust this light to clear a path

Through all the fog of old unease and anxiety

Until you feel arising within you a tranquility

Profound enough to call the storm to stillness.

 

May you find the wisdom to listen to your illness:

Ask it why it came.  Why it chose your friendship.

Where it wants to take you.  What it wants you to know.

What quality of space it wants to create in you.

What you need to learn to become more fully

yourself

That your presence may shine in the world.

 

May you keep faith with your body,

Learning to see it as a holy sanctuary

Which can bring this night-wound gradually

Toward the healing and freedom of dawn.

 

May you be granted the courage and vision

To work through passivity and self-pity,

To see the beauty you can harvest

From the riches of this dark invitation.

 

May you learn to receive it graciously,

And promise to learn swiftly

That it may leave you newborn,

Willing to dedicate your time to birth.

 

On Friday, I will write about what it has meant to receive an illness,  to train my eye to see the slow light that is emerging daily.